This has been an important week. Angie has finished Kindergarten and is she ever ready for first grade! I don't even know how to describe the gains she has made this year. Her determination to keep up with her peers is inspiring. Toby attended her Field Day on Tuesday and he had as much fun as she did. And then there was the cotton candy........
Last day with her friends
Her much-loved "helper" Ms. Villines
Angie's good friend, Miss Heidi
Miss Heidi took Angie on her first ferry ride after school:
Angie is so loved and we are blessed to have many caring people who help her on a daily basis. Her life is full and rich. If you know her, you know that she does not dwell on what is difficult but chooses to embrace every single day as new and exciting.
Today, Angie had an appointment in the Cranio-Facial Clinic at Randall Children's Hospital. She was seen by 11 professionals in one day. Days like this remind me of the many challenges we still have ahead, which I barely consider most of the time. It looks like Angie will require some major treatments in the future and I hate that her future cannot be free of worry after all she has already endured. She was a trooper today and, as always, the professionals working with her were amazed by her gracious presence and her courage.
Angie will see her rehab doctor and have a sleep study next week and we hope to get additional answers. We will continue on the journey that is her life and see what it brings. It is such a privilege to be on this path with her and to see her touch lives everywhere she goes.
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